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Nebula Genomics, with free DNA sequencing, opens for business

Nebula Genomics, with free DNA sequencing, opens for business

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  • This is truly fascinating. Lots to like about how they provide full transparency and control by participants, and it’s true ppl are open to sharing some health data to help cure diseases. But all things considered, this is not a very good financial deal for a person. Your genetic data is worth way more

    This is truly fascinating. Lots to like about how they provide full transparency and control by participants, and it’s true ppl are open to sharing some health data to help cure diseases. But all things considered, this is not a very good financial deal for a person. Your genetic data is worth way more than a free sequencing test.

  • Nebula is both a great use of blockchain technology and a step forward for patient control of their biometric data. By contrast to 23andMe, Nebula lets you get sequenced, and then have granular control of who can BUY your data FROM YOU! This is how it should be: patients in charge of their own information

    Nebula is both a great use of blockchain technology and a step forward for patient control of their biometric data. By contrast to 23andMe, Nebula lets you get sequenced, and then have granular control of who can BUY your data FROM YOU! This is how it should be: patients in charge of their own information, and empowered to share in the financial value that their information produces. I'm delighted to be an advisor of theirs!

  • There’s two catches to this offer. One is stated in the article, but the other is not: When you give your DNA to an ancestry company, you are risking giving away your private personal genomic data (a type of personal data, one of many, like biometric or behavioral personal data) to the government and

    There’s two catches to this offer. One is stated in the article, but the other is not: When you give your DNA to an ancestry company, you are risking giving away your private personal genomic data (a type of personal data, one of many, like biometric or behavioral personal data) to the government and other unknown entities, and you are basically giving away your lucrative piece of a multi-billion-dollar data ecosystem and industry for free, without compensation. That said, this company deserves praise for realizing that privacy is a value differentiator today. Its use of blockchain tech for alleging privacy is brilliant, because my research indicates blockchain is the best hope for any ability to have data privacy now or in the future. However...under current law, if a company you give your private data to gets sold to another company, your data privacy agreement goes out the window, and the new company can do whatever it wants with your data. If you cry foul, you’ll have no recourse, even if the purchasing company is part of the same conglomeration as the original company. So there’s that. But this company is brilliant for using blockchain privacy to add value to its offer by claiming to guarantee privacy. And it’s genius of them to give the user veto power over each sale of their personal data. Credit is given here to this company for these innovations in service level agreements governing data privacy. It’s a start.

  • Considering that the first human genome to be sequenced cost $2.7 BILLION DOLLARS in 1991, this drop in cost is simply crazy. However, we must consider where Nebula will be making that money up—as the old internet trope goes, if you’re not paying for it, you become the product. In this case, they’re

    Considering that the first human genome to be sequenced cost $2.7 BILLION DOLLARS in 1991, this drop in cost is simply crazy. However, we must consider where Nebula will be making that money up—as the old internet trope goes, if you’re not paying for it, you become the product. In this case, they’re asking users who don’t “donate” their data to pay up front: Imagine if Facebook had a similar service, where you pay $99 not to be sold to?

  • DNA Data will be “anonymised and encrypted” but stored with a full health history linked likely linked to financial data on an immutable Blockchain that could potentially be around long after the encryption strength falls behind best practice. Plus can DNA Data ever be truly anonymised?

  • Intriguing, but there are many issues at stake. First thing first, the degree of data security, in a context where there is an entire value chain treating genomic information and no one can guarantee alone that the probability of any leaking of sorts is 0%. Think about the case of Cambridge Analytica

    Intriguing, but there are many issues at stake. First thing first, the degree of data security, in a context where there is an entire value chain treating genomic information and no one can guarantee alone that the probability of any leaking of sorts is 0%. Think about the case of Cambridge Analytica. Secondly, the mass consumerization of genomic data is something that both intrigues and worries, if we don’t help people develop the ability to understand eventual results.

  • One of the coolest things about Nebula, as mentioned in the article, is that they sequence the entire genome AND provide you with the raw data. Many companies like 23andme only sequence regions they have deemed important.

  • The potential treasure trove of insights that we (and especially drug developers) can gain from matching phenotypes and genotypes is still underestimated. Nebulas business model is an interesting way to tackle this challenge but ultimately sacrifices quality of data for quantity.

  • $99 for FULL sequencing is already really cheap, and they are offering free when you answer some questions.

    This can be huge impact.

    23andMe and other DNA testing services usually analyze just certain parts of genomes called SNPs(Single-nucleotide polymorphism) and it often costs around $200. This

    $99 for FULL sequencing is already really cheap, and they are offering free when you answer some questions.

    This can be huge impact.

    23andMe and other DNA testing services usually analyze just certain parts of genomes called SNPs(Single-nucleotide polymorphism) and it often costs around $200. This might change the whole industry.

    But I’m also interested in the difference in the result you get as an user when you have full sequencing.

  • if you are not the customer meaning you are not paying for it then you are the product that’s being sold.

  • Amazing tech that give conclusive evidence that we are all related to the Ju’joasi bushmen of the Kalahari desert, they are our mitochondrial Adam and Eve.

  • This will be a breakthrough in the genome industry.